Here I am playing onboard the ship, Disney Wonder. It was definitely a wonder. I had a great time. Going to be a busy week for me now, have the Pet and CT scans on Thursday morning and the doctor's appointment the following Tuesday. With all the excitement I've had this past weekend, my energy level is up and I'm feeling better than ever. Put out good thoughts to the cosmos for clear scans, that is what I want most of all.

I am back. The trip was incredible. I completely enjoyed the cruise. The Disney Wonder is awesome. The weather was beautiful, there was so much to do onboard the ship. I would go again. My suitcase is still packed, I really should start to unpack it. The whole experience was relaxing and restful. I had a great time. I want to go back!

I'm all set for my journey. Suitcase packed, got my puzzle book and my reading book, and snacks. Completely excited about the trip. Might get to Downtown Disney and maybe even one of the parks while I'm in Orlando. Next week I will have the Pet and CT scans done and a follow up with the oncologist after that. Things have been going well, I've been feeling great. I will not have any posts until I return late on Sunday the 11th. Everyone have a nice week.

It was a busy day at work, trying to clear my desk before I leave for Orlando on Wednesday. I remembered I can eat green leafy vegetables again, so I had to have a Big Mac at lunch. For those who don't know, Mondays are all about the Big Mac. It was decadent; delicious. I have most of my clothes picked out for the trip, tomorrow I will actually pack though.

I slept through the time change and slept until 9:00am. A good ten hours of sleep. I decided to do some laundry and ended up watching VH1-Classic channel all morning. My newest guilty pleasure is "We are the 80's." Nothing but music videos from the 1980s. I can not tell you how much I loved watching them. I'm going to do laundry now. It's been a nice relaxing weekend.

It's Saturday. I slept in, lounged about, showered, got dressed, then headed out for a couple of hours. I got my haircut, then went with Kim to Starbucks for coffee and conversation. Stopped at Noodles for some food then came home. Just a nice relaxing day.

One small step in the right direction. One large step towards getting better. I do not have to take Coumadin any longer. After nine months, the doctor has finally determined enough time has passed, no new clots have been detected, and no complications have occurred. The only thing that remains now is the one word I want to hear to complete my recovery. Remission. I will have scans done in the next few weeks. Hopefully there will be no questionable areas and the scans will be clean. This has been one long process for me. I have been feeling great, so optimism and good thoughts abound.

Wow this year has gone by too fast. I can not believe it is November already. I am taking a break tonight, I didn't bring any work home. I ran downtown after work and got certified copies of my birth certificate so I can go on the cruise and apply for a passport. I want to go to Disneyland Paris in the future. Tonight though, it's all about watching TV and lounging.

The days are flying by. Keeping busy with work, every night I bring home a stack of invoices to data enter. I stopped at the hospital on my way home tonight to get my INR checked, hopefully it will have come down some. I booked a trip on the Disney Cruise ship Wonder for next week Wednesday. I am excited. I need to get downtown to get a certified birth certificate and out by Kim to get a haircut before then. A week from today, I'll be in Orlando. For now, I'm typing away at the computer.

I am done with the stack of invoices I brought home. Tomorrow, I'll grab another stack. At least it's casual day and I can wear jeans to work. It seems I am more productive when I'm working in jeans. Today was trick or treat here in Cudahy and I didn't see very many kids out on the street. No one comes to the apartment building so the peanut butter cups are all mine. I did run out, stopped at Culver's and Border's. The new Peter Pan book "Peter and the Secret of Rundoon" is out, so I had to get a copy. Not too much going on, going to lounge and read tonight.

I've been up since 7:00am, working away at my latest project. Making good time, I'm about half-way done with what I wanted to do today. That'll give me time to do some other things this weekend besides work. Went out to dinner last night, Riviera Maya on KK in Bay View, good mexican food. Then stopped for ice cream. Came home and fell asleep before 10:00pm. I am a wild one.

The blood thinners are working too good, my INR is at 8.1 today. I am going to stop taking them for two days (doctor's orders). Then I will be taking 5mg a day. No shaving for me for a while. Taking a break from data entry and watching Survivor, then back to work for another hour. I will be busy all weekend.

I brought work home with me tonight. Have another large project to get done. This one will keep me busy for quite a while. Ran to Target for some essentials like tooth paste, shaving cream, animal crackers, and Meet the Robinsons DVD. At some point this week I'll find the time to watch the movie. The clerk at the store told me she loved it and has seen it several times. I like hearing good movie reviews. Going to get back to data entry shortly, after I eat. I will take a break to watch America's Next Top Model though. (still hooked on ANTM.)

It's raining out and the temperature is falling. It seems so dreary compared to the weekend. I started going through all the invoices I pulled in Orlando last week. It's going to keep me busy at work for quite awhile. They seem to be finished working on the roof and I was able to park in the lot again. It's so much nicer than parking on the street. Still feeling good, nothing troubling to mention. I will have scans done the first week in November. Until then, I'll just be rambling about things I do.

What an incredible weekend for late October. The weather reminded me of Florida! While I was walking through the zoo today, it seemed just like walking down main street at the Magic Kingdom. Almost. Nothing compares to Disney. I was there for about 6 hours on Monday, got to see the Haunted Mansion and Pirates of the Caribbean, the street parades, ride the Monorail several times, and shop! Lots of fun. The weather turns back to seasonal tomorrow, and I'm back to the routine. Sigh.

I wanted to sleep in this morning, but the repairmen got here early to work on the roof. I'm still parking on the street because of their equipment and a dunpster are in the parking lot. They were supposed to be done by now, but rain has delayed their progress. Hopefully by Tuesday I'll be back in my parking space behind the building.

Well, I'm back home after four days in Orlando Florida. I was able to get to the Magic Kingdom and Downtown Disney in between working. It was a good experience for me, to get out of the office and see how things operate for the company. Aunt Christine and Uncle Doug, Thank you for a wonderful time, it was great to spend time with you while I was there. Thanks Greg and Brad for giving me the opportunity to travel too! I'm feeling fine, seems that my body has settled down and I'm doing well. More on my escapades tomorrow.

I fly out at 8:00am tomorrow. I finished packing and actually shaved tonight. I'm excited about going to Disney. I'm even excited about working in the Orlando area. I will not have access to a computer, so there won't be any posts until I get back on Thursday. I'll keep a log of my activities so I can write about my experiences. Until then.

Not too much going on today, just lounging around. Been reading and watching TV. Earlier I went and got some prescriptions filled and some stuff to take on my business trip next week. I'm looking forward to getting to Florida, warm weather, sun, Disney. I got my clothes picked out, started organizing things and ready to pack. I will actually do that tomorrow, it'll give me something to do besides laying around. Last night I went with Doug to see Char sing with the band, first time in quite a while. To this day, I still get a kick out of hearing her sing. There was a costume party going on, and there were a number of people dressed as clowns. Frightening. Char and I wailed anytime they were around. Too funny. She always makes me laugh.

Blood levels are all normal including platelets. Good news! I am relieved.

It's just downright cold out. Dreary. I'm doing some laundry, and baking some cookies. They started working on the roof of the apartment building today. There's a big dumpster in the parking lot so I have to park on the street for the next several nights. Hopefully this company will repair the roof properly and it won't leak anymore. Funny thing, it's raining right now, I wonder how far they got today.

The weather is about to turn, become seasonal, cool. I've really been enjoying the hot streak, sorry to see it go. I am glad I'm heading down to Florida, for a stint of warm weather. Oh yeah, work too. I keep thinking it's a Disney trip, when it's really a business trip. With a visit to the Magic Kingdom included!

Another wonderful day, warm, sunny. All too soon it'll be blustery and cool. I went shopping earlier today, got The Jungle Book on DVD and some Reese's Peanut Butter Cups. This is a dangerous time of year for me, all the sales on candy are too irresistible. I had lunch with Mom and Dad and played a game of Scrabble with them afterward. For only the third time ever, I won! It was a really close game, with each of us withing points of each other. It was a good game. Now I'm just waiting for the new Simpsons, Family Guy, and American Dad episodes. One more day of great weather and then back to dreary Fall conditions. My trip to Florida is coming at a good time.

I'm about to start my day, getting outside. No specific plans, just going to wander, see where the road takes me. I want to enjoy the beautiful weather while it lasts. My PT/INR is 3.4, so the doctor has dropped my Coumadin to 5mg per day. That is good! Eventually I will stop taking it all together. That is great! Last night Doug and I got out to Bayshore, had food at California Pizza Kitchen and browsed through a couple of shops. It seemed like I was in an entirely different city, I was impressed. (granted I impress easily!)

Tonight I am lounging. The project is wrapping up and the nights and weekends of data entry are done for now. I will be travelling to Orlando October 15th through the 18th. I am excited, have plans all ready for dinner at EPCOT one night and a trip to the Magic Kingdom another night. I finally stopped and had my blood drawn to have my PT/INR checked. I'm so good at procrastinating. The other morning, I hit a van while making a u-turn going to work. The van driver must have thought I was turning into the lot he was coming out of and pulled out and as I was crossing the intersection, our vehicles came into contact. I have nice scratches along the entire length of the drivers side, nothing too bad, just a nice reminder of the incident. Of course the van never stopped. I pulled over and watched it drive away. Good thing it wasn't serious or I'd be extremely irritated. I hate panel vans.

Still working on the project, but am coming to an end, I am tired. Hopefully it should be done by weeks end. Besides from being worn out from all this work, I'm doing well. Not too much going on outside of work right now, so don't have much to say. Once I can lounge nightly, my mind will wander, and I'll have plenty to comment on.

I am actually finished with the stack of paperwork I brought home with me this weekend. I can lounge the rest of the day! I have to run out and get something to eat, otherwise I will be on the couch for the evening. I'm feeling good, really good, no physical problems to lament. So, I need to motivate myself and join a gym. If I don't, I won't get into shape. I'll think about that tomorrow, tonight's meant for lounging.

I wanted to write about what happened a year ago compared to today. I had received a chemotherapy treatment and the hiccups were there, but not much more and it didn't seem like the thing to do. Been busy working on the project, blazed through about 3/4 of the paperwork, tomorrow I'll finish up what I brought home. Nothing too exciting, a lot of typing. The days are nice yet, the nights cool, it isn't Summer anymore. I'll venture out tomorrow and view the world.

It's finally the weekend! I am still bringing work home with me, have loads to data enter, will keep me busy. As soon as this project is done, I will be able to lounge again. I'm going to try and get out for a while tomorrow and Sunday, but it all depends on how productive I am. Tonight I haven't done anything, Doug and I went out to eat and stopped for ice cream, and now I'm just watching TV. I'll be typing away in the morning.

I just made it home when the rain started. A nice, intense thunderstorm. It poured. I brought more work home, been putting in two hours nightly. Going to take a break, forage for some food, then watch Survivor. I'm doing all right, just a little wrought from working so much. I'll rest some over the weekend. Shop too. Need clothes for Orlando, where I'll be heading the week of October 15th for work. Of course I'll have to get in a night at Disney!

Keeping busy with the project from work. I am getting burned out, need to take a night or two off and just lounge. I'm considering joining a gym and starting to get my body in shape. I'm also procrastinating about joining a gym because I do like to lounge.

Here comes the rain and the cooler weather. It's been so beautiful, kind of sorry to see it go. Busy working at home again, this project is so involved and so much yet to do. I'll have to watch TV while plunking away at the computer. I had a great weekend, have been feeling really good. Don't have any doctor appointments for a number of weeks, and no scheduled blood work. It's been a while.

Another beautiful weekend, going to spend sometime outdoors. Celebrating Jody's birthday with a camp out in her backyard! I am going to get to camp this year after all. Couldn't ask for better weather, looking forward to it. All set to go, now I just got to remember how to get to Jodys!

The Hematologist said the indications of reocurrent Hodgkins are not present. My blood counts are up to normal levels, platelets at 87 (getting closer to normal.) The lymphs in question appear to be normal also. There is no conclusive evidence to a relapse or any infection. His recommendation is monitoring and follow ups as scheduled with my Oncologist. Whatever has been suppressing my blood production is no longer present. While unable to identify exactly what the cause was, he is confident that I am on the way to recovery, all blood tests confirm this. (Audible sigh of relief). Thanks Tim and Julia for being with me!

The fog rolled in and it got cooled down. What an interesting evening. Been slaving on a project for work, almost finished, another hour and I should be done, give or take my laziness. Taking a break and watching Survivor China. It hasn't disappointed. Neither did yesterday's premiere of America's Next Top Model. The show's back on, heading to the couch . . .

Tomorrow I have my follow up with the Hematologist.

What a gorgeous night! I love this kind of weather, got my windows wide open. My PT/INR is at 4.5 so the doctor reduced my dosage again! One day I will hopefully not have to take Coumadin. Work is keeping me busy, I'm actually going to be bringing some home with me the next couple of days. Got to make up time I'm using going to all these doctor appointments. One day I will hopefully not have to go on a weekly basis.

I haven't done much today, just went to work. Stopped and got my blood drawn to have my PT/INR checked, needed to have that done. Pretty much the same old routine here, reading and watching TV. I really have been feeling pretty good lately.

Warm days and cool nights. Seems like Fall. The weather promises to get more Summerlike in the next few days, which I prefer. I got out shopping, stopped for coffee with Doug, enjoyed the weekend. Back to work tomorrow. I'm excited about the new television season starting. This week both America's Next Top Model and Survivor premiere. I am a reality show junkie. I get to hear what the Hematologist has to say on Friday. Been feeling really good as of late and all my blood tests have been encouraging.

It's finally the weekend. Of course I want to do 100 different things and will most likely not do any of it. I am attached to my couch, like reading, watching TV, relaxing. I should get out, the sun is shining, but it's early yet. I just may surprise myself and actually get motivated. Who knows, it is the weekend after all.

Thank you everyone who walked with me and Lighting the Night! It was awesome!

Woke up with a sore throat this morning. Grumble grumble. The heat kicked in last night. I fell asleep really early, before 7:30pm. About 10:45pm, I woke to a strobe effect. The Cudahy Police (Four squads, a paddy wagon) and the State Police were arresting someone right out front. I had to get up and look out the window, had to watch. I noticed the smell of heat and the radiator was warm. By 11:30pm the police were gone and I crawled back to the couch and fell back asleep. Then I woke up with a sore throat. Grumble grumble.

The Light the Night walk is coming up! Please meet at 6:00pm on the corner of Prospect and Mason. This is located at the northwest corner of O'Donnell Park. I will have my cell phone with me. The banner is complete, nothing spectacular, which everyone who walks will have to sign. I will be down there by 5:00pm. Get our your walking shoes and let's walk for a great cause!

Lounging today. That's all I have been doing. Reading, watching TV, napping. I need to go grocery shopping, which I will do in a while. I'm enjoying just laying about. Days like this are good for me.

I've been reading and watching another ANTM marathon on TV. Met Kim for coffee for a few hours earlier. Last night I feel asleep before 8:00pm and slept until 2:00am, up for a while then back to sleep until 7:00am. I'm going to have some left overs for dinner and more reading tonight. My couch is my santuary.

It's been a long day. The Hematologist ran 15 different blood tests and reviewed my case with me. While my red and white cells counts have responded very well to treatments, my platelet count remains suppressed. My marrow does not indicate the presence of Hodgkin's. I am not recovering from treatments the way other patients are. There lies the issue. I have another appointment in two weeks, and the Hematologist is going to review the scans to determine whether another lymph biopsy should be done and what node to remove. He feels this would be the best course of action to take at this time. I'm not out of the woods yet. I can only take it one step at a time.

The rain is finally here after a long stretch of beautiful weather. My windows are open and a nice breeze is coming in. Tomorrow I'll be at the Hematologist office. It'll be interesting to hear what they say about my blood. I have been feeling great lately. I've been such a homebody, I think I need to get out and about this weekend. Of course the pull of the couch will be tough to contend with!

Back to work today after a nice three day weekend. I had work to do to keep me busy. Tonight I'm lazy, just lounging on the couch. I really should go grocery shopping but not motivated in the least. I'm feeling good, no issues to complain or worry about. I'm off to the couch to read.

Yesterday I went out for breakfast with Mom, Dad, Tim, Julia, and Dave. Then I went shopping with Tim and Julia. I spent enough money and got some nice things. The outlet mall was crowded. We spent a good number of hours wandering the shops. We went to Red Lobster for dinner. Afterwards, I came home and proceeded to fall asleep. I was woken up about 2:00am by shouting outside. There were two police cars with lights flashing subduing a suspect right in front of the building. A short time later an ambulance arrived and took the guy away. I wonder what happened. I watched until the police left, then went back to the couch and slept. Today I'm going to the baseball game with my dad. It's been a good long weekend overall.

It's been a nice day, got out and enjoyed the beautiful weather. Did some laundry, been reading, and watching another marathon of America's Next Top Model (yes, I am warped). Feeling great, buoyant. I have been drinking 72 ounces of water a day since Monday. Your body really does need water to function. It's a good habit to get into. Tomorrow promises to be another great day, I'm going to get out and enjoy it and go shopping with Tim and Julia to the mall in Kenosha. I want to buy some new clothes!

I had my INR checked yesterday and it's at 5.0, so the doctor is lowering my Coumadin to bring the level down. I think that is great news, my blood is working properly. Maybe I am finally getting to a point where my body can manage without medical intervention. I'm getting excited about Light the Night, Thank you everyone who is committing to the walk and those who donated too! It's going to be a fun evening! I'm glad it's a holiday weekend and an extra day off even though it's the unofficial end to Summer. I like warm weather!!!

The Light the Night Walk for Leukemia and Lymphoma is exactly two weeks away. I would like everyone who is going to walk with me to get registered. Once I know who will be joining MattAtomic, I'll be able to plan a meeting spot for everyone the night of the walk.

Here's the link again: http://teams.lightthenight.org/MattAtomic

From hot and muggy weather to cool and humid in 24 hours. I like Summer, not dreary Fall. Stopped at Target tonight, bought a few things to keep me entertained, I'm such a homebody. Orderred luggage from Disney online too. Charcoal gray with a Mickey insignia. I finally own actual luggage! Feeling pretty good, no physical aches or pains, no mysterious fevers or night sweats either. I started a new book, so I'm off to the couch to read a few more chapters.

I talked with the nurse from the Hematologist office today. I have to be checked to see if there is a problem with the production of blood products. So there are lab work and exams in my future. As much as I don't want to have to go through more tests, I do need to keep on top of things, so I will go. I had dinner by Mom and Dad, with Michael tonight. It was nice to sit and laugh for an hour. I'm letting things get to me lately, and it's making me agitated.

it's funny how you adapt to a routine so easily. A short four day vacation and I want my days to continue like I'm still vacationing. It was a rough morning, getting up and ready for work. You would think that I would have that routine down after all these years.

I've been contacted by a Hematologist who reviewed my case with my Oncologist. I am not sure I want to go to another doctor, have a multitude of blood work done, go through more exams, and wear myself out. Tomorrow I'll call to find out why they want me to come to the office. Unless there is a concrete reason and a definitive course of action, I do not want to deal with another doctor currently. It's never ending.

I had a great time in Michigan. I enjoyed riding the train. Mom and Dad are awesome to travel with. It was especially nice to see Pat, Toni, and Christopher. Way to go Chris! He competed in the Cold Water Mini Triathlon. What an inspirational and exceptional thing to do. It's nice to get away, but even nicer to get home. I'm sure I'll be travelling on the train again.

I'm heading out of town tomorrow, be gone until Sunday. I just have to go see Christopher participate in the Triathlon. Taking the train to Battle Creek. I'll rant and rave when I get back.

If you're going to walk Light the Night, don't forget to register online. It's coming up, Thursday September 13th. Here's the link: http://teams.lightthenight.org/MattAtomic

Have a great weekend, stay dry.

So after the Doctor told me my marrow was good, he talked and talked and concluded I should be monitored to see how my blood is progressing for the next couple of months. After having blood tests, which all my levels were also good, I got a free month supply of Nexium and was sent on my way. There is no reason to get any type of treatment at this point since the lymphs effeted in my chest are miniscule and without a biopsy there is no way to identify what has caused the inflammation. I am relieved!!!

Lost myself at the bookstore for a few hours this morning, cut myself off at three books even though I had quite a bit more. I now have a five book back-up, so plenty to read the next few weeks. It's still gray and gloomy, but the rain isn't as heavy and it seems a bit warmer than yesterday. I didn't win Powerball. Yet. One of these days. Ahh to dream. Candy raisins are addictive, I ended up with a bagful yesterday and have been snacking on them since. The call of the couch is getting louder and louder, so I'm off to lounge and read some more.

What a dreary cool day. Feeling rather well, upbeat, been spending my time reading and napping. Perfect activities for a day like this. Tomorrow I will adventure out, tonight I am a homebody.

Optimism returns in many ways, from a good laugh with a friend, to a hug from my mom. I know that right now I do not know what my body is going through and I haven't given up the thought that it could be something minor or nothing at all. I may not have mentioned that in previous posts, but the thought is there. I would like nothing more but to be all right. I don't feel sick, don't seem dragged out like I did, so it makes me wonder, and it makes me hope.

I can't begin to explain the range of emotions and thoughts rattling through me the last few days. No matter what people have been saying, I ride the roller coaster. Hearing that I may have cancer again disturbed my psyche. I feel like my body has been battered enough and the possibility of facing more treatments is unnerving. I have spent time researching reoccureance and what I have read has somehow calmed me. With each type of lymphoma, there are chances of reoccurence within the first year, and treatment is similar to the first time, and the success rate equal to the first. Until I know exactly what I am dealing with, I can prepare. Of course I want this to be an infection or something minor, but I must face that I could be in for another battle. Despite all this, I remain strong, even though I have moments of anger, sadness, crankiness.

I slept through the evening and night, my body is worn out. Today I felt like I had been run over. Now the achiness is subsiding. I just want to go a few weeks without being jabbed with needles, IVs. While it's been a rough few days, I'm doing all right. I'll see what the test results reveal and go on from there.

I feel like someone beat me with a two by four. My arms are sore from IV's and needles from what seems like gallons of blood drawn this last week. My veins ache, I need a break. My left hip bone is sore from the bone marrow biopsy. I actually fell asleep during the procedure, so I didn't notice any of the effects, the pressure or sensations or the pain. Now the wait begins again. My follow up appointment is next Monday. The following days are all about mending. My body really needs to rest at this point.

If you are going to walk with me for Light the Night in September, you need to register online. Here is the link for my team MattAtomic. I will post this frequently.

http://teams.lightthenight.org/MattAtomic

Everyone is welcome to join me!

I didn't get the news I wanted to hear today. Both the CT and Pet scans showed an area within my chest is questionable. The Oncologist called me a mystery. Physically, he said I am in remission, but the scans are suspect. He felt that if only one had indicated something, he would be inclined to monitor things. Since both showed up, he has decided to go ahead with the bone marrow biopsy and additional blood tests. I have them tomorrow. My blood levels are up, he is encouraged by those results, my body is producing blood products. He prescribed Folic acid and Chromagen tablets for me to assist in blood production. The news left me a bit unsettled, I have calmed down, have gotten lots of encouragement from family and friends.

I had a really good time at the picnic yesterday. Today I'm just going to kick around the apartment, maybe head out to the bookstore, and go to a cook out by my brother's house. Tomorrow, I find out the results of the scans. I am surprisingly calm, thought I'd be apprehensive. Sitting in the waiting room could be a challenge though. I'll have to stop and get a starbucks coffee or something to tide me over.

I had a really good birthday yesterday. I went to Taco Bell, saw Walking Man, Spent time with Mom, Dad, Tim and Julia, and ate cheesecake. Definitely a good day. I'm going to be heading out to my company's summer picnic in a few hours, going to hang out, eat some food, listen to some music, then come home to lounge.

It's My Birthday!!!!

I am doing well. The last couple of days there hasn't been any headaches or muscle cramping. I take that as a good sign. I didn't nap today, am actually doing some laundry. It always seems to pile up. I haven't been preoccupied with my test results as I thought I would be, here it's Thursday all ready and I find out the results on Monday. There's really nothing I can do, so worrying is pointless. I will be watching TV and reading tonight, I like lounging if you haven't figured that out yet!

http://teams.lightthenight.org/MattAtomic

Here is a link to Light the Night, where you can sign up to participate in the walk.

"Light The Night® will return to O'Donnell park in Milwaukee on September 13, 2007. Check in begins at 5:00pm with the stage presentation and Walk beginning promptly at 6:30pm. Join us as we walk together to accomplish the Society's mission: to cure leukemia, lymphoma, and myeloma and improve the quality of life for patients and their families.
You have the chance to be a part of something great. The Society is the largest voluntary health organization dedicated to finding cures for blood cancers. Because of the success of Light The Night walkers across the country, we are well on our way to accomplishing our mission! Research is where the answers to our questions about cancer lay, and the Society is investing in the most promising research available, and investing a lot. The Society leads all major nonprofit health agencies in the percentage of dollars raised directed to research.
Teams are the heart of Light The Night. They are made up of people just like you: friends, family and colleagues joining together to accomplish a common mission - finding a cure!"

I will post additional information as it becomes available. I hope you all join me for this, I'm excited about getting a lighted balloon!

I can honestly say that I'm feeling pretty good today. No headaches or muscle cramps to speak of. The transfusions have improved my physical condition. For each day I feel good, my mental condition just may improve. It sure is hot and sticky out, even with the short bursts of rain moving through the area. I stayed up too late last night watching the 100 greatest songs of the 80s on VH1 Classics. It was entertaining, and I love 80s music. Of course I couldn't nap when I got home because I had to watch America's Next Top Model at 4:00pm. Why am I so enthralled with that show?

Well, I'm in for a nerve-wrecking week. I had the CT and Pet scans today, have my follow-up appointment next week Monday. I was surprisingly relaxed through the whole experience, the time went fast, from waiting the hour after given the contrast material and dye to the 45 minutes through the machine with my arms raised over my head. I'll be thinking clean, clear scans all week. I want to be done with this, tired of needles, blood work, transfusions, hospitals. I want to run, play, and be strong again.

There's something about waking up on your own couch after 12 hours sleep that is relaxing, refreshing. Let me back pedal to Friday. I went to have tests done at the Oncologist's. The blood test revealed I was still very anemic. It was decided I would be hospitalized until they find out why. I got home, packed a bag, and waited for the call from the hospital. My bed would be ready at 7:00pm. Dad came and got me. After settling in and eight vials of blood, I received blood transfusions. Saturday, tests didn't reveal anything on why I am anemic, but the transfusions improved my levels. I had an ultrasound, which showed the blood clot had dfinitely been reduced in size. I received another transfusion (900cc in all) and released from the hospital about 7:00pm. I came home, laid on the couch and fell asleep immediately. I just woke up about thirty minutes ago. It was nice waking up on my couch. All medications have been stopped to see if any are effecting my blood production and will be following up with the Oncologist tomorrow. I will have a bone marrow biopsy done once I am off the Coumadin. I have the CT and Pet scans in the morning. Today is all about lounging.

someone is making cinnamon toast here at work and it smells delicious. it's driving me crazy, I want some!!!! I have been doing all right, the headaches have lessened to a much more tolerable level. I have blood work and scans scheduled for Monday August 6th. I will be relieved when this is over with and I'm not contending with headaches, muscle cramps, weariness. I know it's been a tough week for me, but I'm pushing through.

September 13, 2007. Write the date on your calendar. I will be writing more about the event when details become available. It is a two mile walk through downtown Milwaukee. I encourage everyone to join me. I will be registered as a team captain of "MattAtomic". This is a benefit to raise awareness and money for the leukemia and lymphoma society.

Last night was much better than the previous one. Only a slight headache, nothing too painful, easy to contend with. I had a delicious dinner with Mom, Dad, Mike, and Erin. Meatloaf, roast beef, green beans, potatos, rolls, applesauce, and chocolate pudding. I read some, watched TV, and went to bed by 9:30pm, fell asleep immediately. I feel rested, not worn out. I'll have to keep the iron regiment going. Blackstrap molasses tastes like licorice to me, it's good in my morning Cream of Wheat. I limit my caffiene intake to one mug of coffee in the morning, then switch to orange juice and water. Vitamin C helps the body absorb iron. It's interesting how much you learn while dealing with health issues. Here's to a better day!

It's been a rough day, I feel like I'm struggling to get by. My head is pounding and I'm agitated. I made it through the day, but seem to have fallen apart once I got home. I'm scared. This anemia bout has me worried. I'm trying to increase my iron and B12 intake to compensate for the low levels. I know it's going to be a while before I get better, but I just want the side effects to subside.

I had a good day. Started out with breakfast with Mom and Dad, and Dave and Mary. Two eggs over easy, french toast, bacon, and coffee. Then Mom, Dad, and I went to the Lake View Mall in Kenosha, I wanted to spend hundreds of dollars, but limited my purchases to a pair of sandals and a jacket. I want to go back to get a sweater I liked at the Calvin Klein store. Maybe in a week or two. If it's there, I'll buy it then, otherwise oh well. I came home and have been reading and watching tornado intercept shows. It's been a good day.

Last night was a restless, anxious night for me. I was agitated by the day's events. I finally fell asleep around 11:00pm into a nice, peaceful sleep. I awoke this morning feeling relaxed and renewed. I did something I haven't done in months, weeks, days. I exercised. Push ups, sit ups, jumping jacks, and a short bike ride. It felt wonderful, I didn't push myself, but actually got myself working out. I had some breakfast, showered, and went out to the book store. Going to just lay low and rest this weekend, shake off the remnants of yesterday. My arm is bruised and sore from the IV that I inadvertantly pulled out yesterday while twisting my body in the uncomfortable hospital bed. It was comical and frightening, the IV flying and blood soaking my gown. The nurse came and cleaned it all up. My trip to the emergency room was interesting, scary, unnerving, and relieving. I hope these moments are few and far between.

I never got to Janet's. While packing up the Jeep, I got light-headed, dizzy, and an intense throbbing headache in the back of my skull. I came up to the apartment, sat down and felt worse, broke out into a sweat. I became scared, called the doctor and ended up going to the emergency room. Luckily, there's no bleeding out or a clot in the brain, but I am severely anemic, my body is not producing blood products, so I am facing more transfusions. Unfortunately, there will be no camping, and I will be resting at home. Will it ever end?

Heading out to pick up Janet and venture to Collins Park in Rosholt WI for the Klugiewicz Family Campout. Last year I had to miss out because I started my chemotherapy that same weekend. I'm excited to be going this year. I'm all packed and ready to go. I'll post when I return on Sunday. Enjoy your weekend! Oh, I had my blood tested and my PT/INR is at 2.5, therapeutic. I don't have to get my blood tested again for another few weeks!

Another early morning post. I'm at my desk, ready to start my day. I have a ton of things to do tonight after work, laundry, packing mostly. I'm so unprepared for camping this weekend. Excited too. Had my blood drawn yesterday, hopefully the thinners are still thinning and I won't have to test every week at this point. I'm watching out the window, waiting for the rain and thunder. waiting. I'm sure it'll storm this weekend in Stevens Point!

Early Tuesday morning, just staring out the window, from my desk. Summer is flying by. Had dinner by Mom and Dad's last night with Michael and Scott. Awesome shredded beef sandwiches, corn on the cob, roasted potatos, and fresh green beans. I enjoyed it very much. Went home, read, watched some TV. Tonight I will do some laundry and some shopping in anticipation of camping this weekend up in Stevens Point. Well, back to work for now.

The Brewers won!!! 7-5 against the San Francisco Giants. My voice is hoarse from yelling. I got a kick out of the pyrotechnics after each home run (two of them) and at the end of the game. Tailgating was fun, loads of great food. I am wiped out, been going since 7:00am. Heading to the couch to rest for the evening.

What a beautiful day for a walk and for shopping. Went down by the lake and wandered the bike trail for about an hour this morning. Got in the car and drove to the store and bought fruit for tailgating tomorrow. Instead of putting it into a large bowl, I have packed individual baggies for convenience. Tonight I plan on reading and watching TV, looking forward to the Brewer's game. Early start, meeting Steve and Tracy at 9:30am, and everyone else by 10:00am. Collectively there's 40 people going to the game. I got hot dogs, fruit, m&m's, and Lost Dysfunctional energy drink to drag with me. I'm sure it'll be a blast.

Another weekend is here. I plan on running around tomorrow, going to construct a fruit salad to take to the tailgate party on Sunday for the Brewers game. Tonight I stopped at KFC and tried the boneless teriyaki chicken wings, they were all right, the mashed potatos rocked. There's an America's Next Top Model marathon on TV and of course I have to watch it. I am such a dork.

My PT/INR level is at 2.2, which is therapeutic. Now I must maintain. Call me insane, but I went book shopping and found a new series called The Kingdom Keepers. The author is Ridley Pearson, who co-wrote the Peter Pan novels with Dave Barry. Taken from his website: 'In this fantastical thriller, five young teens tapped as models for theme park "guides" find themselves pitted against Disney villains and witches that threaten both the future of Walt Disney World and the stability of the world outside its walls.Using a cutting-edge technology called DHI—which stands for both Disney Host Interactive and Daylight Hologram Imaging—Finn Whitman, an Orlando teen, and four other kids are transformed into hologram projections that guide guests through the park.The new technology turns out, however, to have unexpected effects that are both thrilling and scary. Soon Finn finds himself transported in his DHI form into the Magic Kingdom at night. Is it real? Is he dreaming?Finn's confusion only increases when he encounters Wayne, an elderly Imagineer who tells him that the park is in grave danger. Led by the scheming witch Maleficent, a mysterious group of characters called the Overtakers is plotting to destroy Disney's beloved realm, and maybe more.This gripping high-tech tale will thrill every kid who has ever dreamed of sneaking into Walt Disney World after hours, and wondered what happens at night, when the park is closed.' A MUST READ!!!

Still waiting to hear from the doctor about my latest PT/INR level. Guess I'll be calling the office tomorrow. Went grocery shopping, did two loads of laundry, and now watching some TV.

I went to the website www.simpsonizeme.com and became a Simpsons character!!!

Another busy weekend. Got to Bastille Days, ate at the Hollander Cafe (Dutch food), shopping, McDonalds, got refills on Coumadin, lounged, read, watched TV. Summer is going fast, got to enjoy the days.

No more injections! I like that. My PT/INR is in therapeutic range so I do not have to give myself Lovenox shots. I will have my blood drawn again on Monday to check the levels again. It is the weekend, time for rest and play, and I plan on doing just that.

My PT/INR is currently at 2.7!!! I have finally gotten to therapeutic levels for the first time in two months!!! The doctor had me get my blood drawn again this morning to see where I am at so he can adjust the medications accordingly. (cross the fingers, NO MORE INJECTIONS!!!!)

Tonight I plan on shaving. Since I got my haircut (Thanks Kim!), I figure I should clean myself up. This morning I got into my car and got tangled up in a spider web. A little spider had spun one from the rear view mirror to the steering wheel and the gear shift. I had to clear it out and find the spider, which was hanging from the mirror. I had to chuckle about it. I stopped and got my blood drawn after work, so I shall find out my PT/INR tomorrow. I scheduled my scans for August 6th. Now I'm going to forage for something to eat.

Another hot steamy day. I have won the battle with the yellow jackets building a nest in my front window. A few days of spraying the nest and window frame and they are eradicated. Now to clean up the window sill and get the window closed. Feeling pretty good, tomorrow I'll get my blood checked. The oncology clinic called to schedule CT and Pet scans for early August. I'll arrange that in the morning. Tonight if the weather holds, I'm going to run out by Kim. Otherwise tomorrow for sure, I could go swimming. Sounds like a good idea.

It's been a hot couple of days, been doing fine. Rain rushed through earlier, but now it's getting steamy again. I don't mind having to give myself injections, but will be glad when I don't have to anymore. I'll have my blood checked on Wednesday.

It's early Saturday morning and the humidity is high, the temperature warm, going to be a glorious Summer day. My PT/INR is up to 1.5, the Lovenox injections seem to be working. Once I get over 2.0 I will be able to stop the injections. I am now taking 15mg Coumadin daily also. Since it is the weekend, I plan on getting outside and wander about, I wonder what adventures await me.

Just got back from Summerfest with Jody. We went down right after work tonight. It rained when we got there, so we bought ponchos. Of course the rain stopped the sun came out and it got very muggy. I had to give myself a Lovenox injection while I was there, so I stopped at the first aid station and they were very accomodating. Much better than trying to give myself the shot in the public restroom. We saw a couple of bands, ate some food, and people watched. I had a really good time. In the morning I have to get my blood checked, hopefully the PT/INR level has risen to therapeutic levels. Keep your fingers crossed.

Well, Dad and I withstood the wind, rain, lightning, and thunder. We watched the entire fireworks display. We had met Kim, Scott, Sarah, and Nicholas down by the Veterans Memorial about 7:00pm. First it started raining lightly, then increased in intensity, followed by lightning, thunder. The park started emptying out, many people leaving. We hunkered down under umbrellas and waited. For a few moments, we wondered if they fireworks would be cancelled. The show began at 9:30pm as scheduled. The wind and rain kicked up for awhile but the fireworks continued. At one point fireworks were bursting in the sky as lightning was flashing out over the lake. It was beautiful. The show lasted about an hour. I had a really nice time, and since the crowd had thinned out, had an easy time getting out of the parking lot onto the freeway and home. Happy Fourth of July! Enjoy the holiday.

It's been one year since I was diagnosed with Hodgkin's Lymphoma. What a rough year it's been. Even with the chemotherapy, radiation, transfusions, injections, thousands of blood draws, I stand. It's a bittersweet moment, looking back and actually cringing at what I've endured, looking forward to all that I want to accomplish. I went to the fireworks last year as someone who wouldn't let cancer stop me from doing what I love to do, and I go tonight as a cancer survivor doing what I love to do.

All of a sudden, it is July. I've seen fireworks, been to parades, gotten sun burnt, rode my bike, been to cook outs, spent time with family and friends, it's all good.

My pro-time (INR) level has fallen again to 1.2, which isn't a good thing. I may have to take Lovenox shots to get the level back up. I will have my blood checked again next week and if things haven't improved or the level falls once more, then it's more needles for me. It's interesting how things can go awry, but I will follow the doctor's orders and hopefully things will get better. I'm feeling fine, wouldn't be able to tell you things are going badly with the Coumadin. Speaking of Coumadin, it's time for me to take my daily dose.